PARTNERS IN POLICYMAKING NATIONAL ACADEMY May 15-16, 1992 Doubletree Hotel at Lincoln Centre 5410 LBJ Freeway Dallas, Texas Sponsored by: Texas Developmental Disabilities Planning Council World Institute on Disability Minnesota Governor's Planning Council on Developmental Disabilities DEPARTMENT OF HEALTH & HUMAN SERVICES ADMINISTRATION FOR CHILDREN AND FAMILIES 370 L'Enfant Promenade, S.W. Washington, D.C. 20447 May 15, 1992 Dear Friends: Welcome to Texas and the 1992 National Academy on Partners in Policymaking. Across the United States, Partners graduates are working to create change, to in- influence policymakers on the load, state, and national levels, and to educate others on why and how we must create a new way of thinking about people with disabili- ties. The 1992 National Academy brings together Partners and state coordinators in a unique convention where past experiences will be shared and new visions will be explored. For that's what Partners in Policymaking are-visionaries. Visionaries who are not willing to accept the status quo but who dream about how things should be for their communities, their states, and our nation. Partners don't just dream, though. Part- ners are turning dreams into realities. Partners was, in fact, endowed with vision from the very beginning. In 1987, Colleen Wieck, Executive Director of the Minnesota Governor's Planning Council on Develop mental Disabilities and Ed Skarnulis of the Minnesota Department of Human Services talked together about the potential impact of individuals being educated and empow- ered to change public policy as it relates to people with disabilities. From that conver- sation, Partners in Policymaking was born. Minnesota led the way and set "the stand- ards. Eleven states foIIowed: AIabama, California, Colorado, Connecticut, Illinois, Indiana, Iowa, Louisiana, New York, Ohio, and Texas. Twelve states are joining the efforts in 1992: Arkansas, Delaware, Florida, Georgia, Hawaii, Mississippi, New Mexico, North Carolina, Oklahoma, South Dakota, Tennessee, and West Virginia. Another twelve states are expected to begin Partners in 1993. No other method of training has achieved the depth and the positive outcomes experi- enced by Partners in Policymaking. The Partners program is so successful because it places high expectations on its participants. Partners graduates have been trained in and developed competencies in specitlc areas that encompass today's disability issues. I salute every state represented at the Academy this weekend, for the commitment to time, personnel, and resources necessary to operate a successful Partners program. I salute every Partner, for the dedication and devotion you bring to the cause of creat- ing change on behalf of people with disabilities. And I salute Jopie Smith, Partners Letter to 1992 National Partners Academy Page 2 May 15, 1992 coordinator from Texas, and Colleen Wieck, whose dream of a 1992 National Acad- emy has come true today. My dream-my vision-is that your participation here will create a family across the United States, a family whose members support each other and learn from each other, but especially, a family who continues to dream the dream and makes the dream come true. Best wishes, Deborah L. McFadden Commissioner Administ ration on Developmental Disabilities A TEXAS SIZE THANK YOU TO J OPIE SMITh FOR COORDINATING THE 1992 PARTNERS ACADEMY NATIONAL ACADEMY ON PARTNERS IN POLICYMAKING THURSDAY-SATURDAY, MAY 14-16, 1992 DOUBLETREE HOTEL AT LINCOLN CENTRE 5410 LBJ FREEWAY DALLAS, TEXAS RESOURCE NOTEBOOK INDEX THE ACADEMY Agenda, Academy Participants, Academy Committee. THE PROCESS BEGINS Announcements, Applications, Recruitment, Screenin9, Selection, Letters, Agreements. RELATIONSHIPS Individual Supports, Cultural Issues, Bonding. FORMAT Training Content, Speakers, Homework. LOGISTICS Budgets, Staff, Roles. EVALUATION Forms, Partners' Comments, Assessments. FUNDING SUPPORTS Creative Ideas. POSTGRADUATE Supports, Activities, Reports. POTPOURRI Good Ideas from Here and There. PARTNERS GRADUATES State Rosters. ******************************** * ND Means No Date on Material * ******************************** The Academy is funded in part through grant number 90DD0221 under provisions of the Developmental Disabilities Act of 1990 (P.L. 100-146). Content of this binder does not re- flect the position or policy of the Administration on Devel- opmental Disabilities nor the Department of Health and Human Services. NATIONAL ACADENY ON PARTNE RS IN POLICYNAKIN~ NEETING OF REPLICATION STATES FRIDAY-SAmAy, NAY 15-16, 1992 DOUBLETREE HOTEL AT LINCOLN 5410 LBJ FREEWAY DALLAS, TEXAS AGENDA FRIDAY, MAY 15, 1992 8:00 a.m. 8:15 a.m. 8:30 a.m. 9:00 a.m. 9:15 a.m. 11:00 a.m. 11:30 a.m. 1:00 p.m. 2:00 p.m. 3:00 p.m. 3:30 p.m. 4:30 p.m. 5:00 p.m. 5:15 p.m. REGISTRATION GOOD MORNING, AMERICA Welcome. Roger Webb, Executive Director, and Lee Veenker, Chair, Texas Planning Council for Developmental Disabilities. JEOPARDY Participant Introductions and Academy Overview. Fran Smith NOVA The National Agenda. Deborah McFadden, Commissioner, Administration on Developmental Disabilities THE YOUNG AND THE RESTLESS What Is Partners in Policymaking? Colleen Wieck and Partners Graduates A WHACK ON THE SIDE OF THE HEAD Lessons on Creative Thinking and Instructions. Fran Smith LUNCH BRAINSTORMING BREAKOUTS 1 Group A: `The Dating Game"-Recruitment, Screening, Selection. Group B: "Family Ties "--Individual Supports, Cultural sensitivity, Bonding. BRAINSTORMING BREAKOUTS 2 Group A: "Wheel of Fortune"-- Training Content, Speakers, Homework. Group B: "The Price is Right"--Budget, Staff Roles/ Logisitcs. BREAK 30 MINUTES Group Reports. REFLECTIONS DU JOUR Ed Roberts, President, World Institute on Disability NIGHTLINE Team Asaignment8, partners Graduates Meeting only. Kathie Snow CHEERS Reception. NATIONAL ACADENY ON PARTNERS IN POLICYMAKING NEETING OF REPLICATION STATES FRIDAY-SATURDAY, NAY 15-16, 1992 DOUBLETREE H- AT LINCOLN CENTRE 5410 LEJ FREEWAY DALLAS, TEXAS AGENDA SATURDAY. NAY 16. 1992 8:30 a.m. 9:00 a.m. 10:00 a.m. 10:45 a.m. 11:45 a.m. 1:15 p.m. 2:00 p.m. 3:00 p.m. 3:15 p.m. 4:30 p.m. STAR TREK: THE NEXT GENERATION How Partners Are Making a Difference. Colleen Wieck and Partners Graduates THE PEOPLE'S COURT Evaluation Is Critical. Tom Zirpoli LET'S MAKE A DEAL Funding Supports. Small Groups. Fran Smith THE WONDER YEARS Postgraduation Issues. Small Groups Fran Smith LUNCH 45 MINUTES Group Reports. 20 QUESTIONS ABOUT PARTNERS Fran Smith and Colleen Wieck BREAK SATURDAY AFTERNOON LIVE Partners Graduates WINGS Closing Comments. Fran Smith NATIONAL ACADEMY FOR PARTNERS IN POLICYMAKING May 14-16, 1992 ALABAMA Albright, Sharon 4505 Grizzard Road Huntsville, AL 35810 205/852-2315 (h) 205/539-2266 (w) Prince, Betsy 7530 Halcyon Forest Trail Montgomery, AL 36117 205/277-2285 (h) 205/265-0245 or 205/262-7688 (w) ARKANSAS Rankin, Jane 11 Lakeview Drive RuSsellville, AR 72801 501/968-7059 Shepherd, Sheri Rt. 1, BOX 678 Arkadelphia, AR 71923 501/246-9886 (W) 501/246-3818 (h) CALIFORNIA Kerzin,, Alan Area IV Developmental Disabilities Board ]700 Second Street, Suite 384 Napa, CA 94559 707/252-6644 (W) 707/823-7999 (h) Jessup, Pam 4048 Escuela Drive Napa, CA 94558 707/255-1901 Rice, Larry F. 2425 Apple Tree Drive Santa Rosa, CA 95403 707/527-1 757 COLORADO Honeyman, Ellie 8290 Brentwood Court Arvada, CO 80005 303/331-8438 (W) 303/431-8435 (h) Ramsour, Barbara 4540 E. 17th Ave. Pkwy. Denver, CO 80220 (303) 399-7113 Reed, Leslie 1625 Bellaire Street Denver, CO 80220 303/871-0227 (W) 303/377-8719 (h) CONNECTICUT Cole, Molly The Family Center Department of Social work Newington Children's Hospital 181 East Cedar Street Newington, CT 06095 203/667-5288 (W) 203/525-3640 (h) Glomb, Laura 1 Oakwood Circle Ellington, CT 06009 203/667-5288 (W) 203/871-6540 (h) DELAWARE Henderson, Larry Booth Social Service Center 104 West 5th Box 2390 Wilmington, DE 19801 302/656-1667 Linehan, James c/o Dept. Administrative Services Townsend Building, Third Floor DAS P.O. Box 1401 Dover, DE 19903 302/739-3613 (W) 302/239-7099 (h) FLORIDA ILLINOIS Messer, Michael 4201 NW 2nd Avenue Miami, FL 33127 305/576-9675 Plotkin, Leo 3666 Scarlet Tanager Dr. Palm Harbor, FL 34683 813/784 -1118 (w) 8 13/785-4289 (h) GEORGIA Burkett, Harry Gov. Council on Developmental Disabilities 878 Peachtree Street, NE, Suite 620 Atlanta, GA 30309-3999 404/894-5790 (W) 404/967-3088 (h) Ginny Riley Retarded Citizens/Atlanta 1687 Tullie Circle NE #l 10 Atlanta, GA 30329 404/325-4557 (W) Wa]drop, Carol 6077 Wilderson Road Rex, GA 30273 404/474-8921 HAWAII Kami, Clarysse 5 Waterfront Plaza Planning Council on Developmental Disabilities 500 Ala Moana Blvd., Suite #5-200 Honolulu, Hawaii 96813 808/586-8100 (W) 808/486-8455 (h) Proffitt, Peggy 2024 Aaniu Loop Pearl City, Hawaii 96782 808/456-2777 (W) 808/456-2777 (h) Rivers, Debbie 1717 Houghtailing Street Honolulu, Hawaii 96817 808/538-6789 (W) 808/842-1782 (h) Dermott, Betty 812 East University Avenue Urbana, XL 61801 ` 217/367-2202 (W) 217/328-5621 (h) Ryan, Sandy Planning Council on Development Disab~ State of Illinois Center 100 West Randolph, Suite 10-600 Chicago, IL 60601 312/814-2080 (W) 708/305-8837 (h) INDIANA Griffin, Nancy Projects for Persons with Disabilities, In 850 N. Meridian, Suite 3-C Indianapolis, IN 46204 317/232-0750 (W) 317/257-7322 (h) Roberts, Donna 5429 Bay Harbor Dr. Indianapolis, IN 46254 317/632-3561 (W) 317/297-2007 (h) IOWA Gobb, Carl c/o Heritage Manor 4885 Asbury Road Dubuque, IA 52002 319/556-0182 Piper, Sylvia Iowa Protection & Advocacy, Inc. 3015 Merle Hay Road, Suite 6 Des Moines, IA 50310 515/278-2502 (W) 515/964-3706 (h) Takemoto, Al 4250 Newport Bettendorf, IA 52722-1848 309/782-0453 (W) 319/359-0874 (h) Tigges, Ken Planning Council for Developmental Disabilities Hoover State Office Building, First Floor Des Moines, IA 50319-0114 515/281-6430 (W) 515/965-9131 (h) o LOUISIANA Dangerfield, Linda Route 1, Box 548 Edgard, LA 70049 504/446-1559 (W) 504/497-8712 (h) Davies, Patsy 1507 Letitia Street Baton Rouge, LA 70808 504/342-0437 (W) 504/346-0920 (h) Mialaret, Ida 1328 Melody Metairie, LA 70002 504/834-4513 Miaiaret, Jerry 1328 Melody Metairie, LA 70002 504/834-4513 MINNESOTA Hanco~, David Planning Council on Development Disabilities 300 Centennial Office Building 658 Cedar Street St. Paul, MN 55155 612/349-2560 or 612/297-7519 (w) 612/522-5639 (h) Swenson, Sue 4604 Upton Avenue, South Minneapolis, MN 55410 612/832-2762 (W) 612/925-4716 (h) MISSISSIPPI Turner, Alma 89 Azalea Drive Columbus, MS 39701 601/329-7358 or 601/329-7359 (w) 601/327-9471 (h) NEW MEXICO Crawford, Beverly "Gay" 905 Plateau Circle Gallup, NM 87301 505/722-5700 Jennings, Patty The ARC - New Mexico 1107 North Kentucky Roswell, NM 88201 505/623-9378 Johnson, Virginia "Ginny" Development Disabilities Planning Council ARK Plaza Building, Suite B-200 2025 South Pacheco Street Santa Fe, NM 87505 505/827-6260 White, Cindy Parents Reaching Out 1127 University Blvd., NE Albuquerque, NM 87102 505/842-9045 (W) 505/883-8549 (h) NEW YORK Reynolds, Shirley J. 13 Malibu Hill Renssealer, NY 12144 518/432-8233 (W) 518/465-5659 (h) Solomon, Carol 13 Utopian Avenue Suffern, NY 10901 914/942-0002 (W) 914/357-6293 (h) Harrison, George Route 2, Box 186 Coffeeville, MS 38922 601/226-3421 (W) 601/675-2949 (h) NORTH CAROLINA Balak, Peggy Council on Development Disabilities 1508 Western Blvd. Raleigh, NC 27606 919/872-2735 (h) 919/733-6566 (W) Ingram, Terry (Mr.) North Carolina Self Advocacy Association Route 2, Box 193-A Four Oaks, NC 27524 (919)934-5518 Townsend, Penny Prader-Willi Association 2401 Tanglewood Drive Albemarle, NC 28001 704/982-7905 (h) 704/982-9171 (W) Welch, LuAnne Developmental Disabilities Consortium Project 1515 Mockingbird Lane, Suite 901 Charlotte, NC 28209 704/543-8286 (h) 704/529-5195 (W) OHIO Heizman, Cathy W. Family Leadership Development Child A"dvocacy Center 106 Wellington Place, Lower Level Cincinnati, OH 45219 513/381-2400 (W) 513/923-3692 (h) Holden, Lea Family Leadership Development Child Advocacy Center 106 Wellington Place, Lower Level Cincinnati, OH 45219 513/381-2400 (W) 513/923-3692 (h) Kirkpatrick, Lillian 199 Park Avenue New London, OH 44851 419/929-5085 (W) 419/929-5085 (h) Wichman, Joan 2918 Urwiler Ave. Cincinnati, OH 45211 513/241-9933 (W) 513/481-3994 (h) OKLAHOMA Burns, Patricia Oklahoma Planning Council P.O. BOX 25352 Oklahoma City, OK 73125 405/521-4984 (W) 405/755-8497 (h) Stopp, Genell 2635 East Seventh Street Tulsa, OK 74104 918/592-1235 (W) 918/582-5058 (h) SOUTH DAKOTA Anderson, Ed. D., Charles A. Planning Council on Developmental Disa Hillsview Plaza, East Highway 34 c/o 500 East Capitol Pierre, SD 57501-5070 605/773-6415 Fry, Colleen Advocacy Services 221 S. Central Pierre, SD 57501 605/224-8294 (W) 605/224-1 107 (h) Rowenhorst, Eugene 2704 Woodland Hills Rd. Sioux Falls, SD 57103 605/331-2721 (W) 605/332-4216 (h) TENNESSEE Dedman, Ms. Jean Tennessee Planning Council for Developmental Disabilities 3rd Floor Doctor's Building 706 Church Street Nashville, TN 37243-0675 615/741-3805 (W) 615/269-0835 (h) Ruta, Jo Chattanooga State Technical Community College 4501 Amnicola Highway Chattanooga, TN 37406 615/697-4441 (w) Turner, Mike 721 Baugh Road Nashville, TN 37221 615/734-1728 (w) 615/646-0369 (h) TEXAS Baker, Susan 719 South Hill Street Alvin, TX 77511 713/331-3813 Clay, Lettitia 1515 Shafter San Angelo, TX 76901 91 5/655-3205 Cordova, Carlos 5526 Silver Maple Arlington, TX 76018 214/266-4524 Crowley, Valerie 5610 Waddell Fort Worth, TX 76114 817/626-431 1 Hudson, Alicia 15 Quiet Oak Circle The Woodlands, TX 77381 713/750-5619 Loera, Felipe 2604 S. 2nd Austin, TX 78704 512/444-6853 Lopez-Wilson, Martin 1548 Diego Rivera El Paso, TX 79936 915/857-0791 Ratliff, Beccy 1100 Elderberry Court Benbrook, TX 76126 8 17/249-6575 Sheehan, Candy 759 Pelican Lane Coppell, TX 75019 214/462-7830 Villela, Angie 2512 S. Hackberry San Antonio, TX 78210 512/534-3836 Roger Webb Texas Planning Council for Developmental Disabilities 4900 North Lamar Blvd. Austin, TX 78751-2316 512/483-4080 WEST VIRGINIA Liily, Jan Development Disabilities Planning Counc 1601 Kanawha Blvd. West, Suite 200 Charleston, WV 25312 304/348-0416 Lipscomb, John 1104 Oakmond Drive Clarksburg, WV 26301 (can be reached through the ARC-Harrison County office at 304/624-91 14) Meadows, Ann Mountain State Centers for Independent 914 1/2 Fifth Avenue Huntington, WV 25701 304/525-3324 (w) 304/743-9424 (h) Smith, Kevin 1500 12th Street, #104 Vienna, WV 26105 304/295-9557 FACULTY Roberts Ed World Institute on Disability 510 16th Street, Suite 100 Oakland, CA 94612 510/763-4100 (w) 510/655-5946 (h) Smith, Fran 2574 Sheldon Richmond, CA 94803 510/222-2999 Smith, Jopie Texas Planning Council for Developmental Disabilities 4900 N. Lamar Blvd. Austin, Texas 78751-2316 512/483-4080 Snow, Kathie 250 Sunnywood Lane Woodland Park, CO 80863-9434 719/687-8194 Wieck, Colleen Minnesota Governor's Planning Council on Developmental Disabilities 300 Centennial Office Building 658 Cedar Street St. Paul, MN 55155 612/296-9964 (W) 612/788-1450 (h) Zirpoli, Dr. Tom Mail Box 5017 University of St. Thomas St. Paul, MN 55015 GUESTS Abeson, Al Association for Retarded Citizens/US 500 East Border Arlington, TX 76010 817/261-6003 Davis, Sharon Association for Retarded Citizens/US 500 East Border Arlington, TX 76010 817/261-6003 Storey, Deborah Association for Retarded Citizens/US 500 East Border Arlington, TX 76010 817/261-6003 NATIONAL ACADEHY ON PARTNERS IN POLICYMAKING THURSDAY-SATURDAY, MAY 14-16, 1992 DOUBLETREE HOTEL AT LINCOLN CENTRE 5410 LBJ FREEWAY DALLAS, TEXAS 1992 NATIONAL ACADEMY COMlflTTEE ED ROBERTS, PRESIDENT World Institute on Disability 510 16th Street Oakland, California 94612 (510) 763-4100 FRAN SMITH 2574 Sheldon Drive Richmond, California 94803 (510) 222-2999 JOPIE SMITH Consumer Empowerment and Training Director Texas Planning Council for Developmental Disabilities 4900 North Lamar Boulevard Austin, Texas 78751-2316 (512) 483-4080 KATHIE SNOW Partners Graduate 250 Sunnywood Lane Woodland Park, Colorado 80863-9434 (719) 687-8194 COLLEEN WIECK, PH.D. Executive Director Minnesota Governor's Planning Council on Developmental Disabilities 300 Centennial Office Building 658 Cedar Street St. Paul, Minnesota 55155 (612) 296-4018 NATIONAL ACADEMY ON PARTNERS IN POLICYMAKING THURSDAY-SATURDAY, MAY 14-16, 1992 DOUBLETREE HOTEL AT LINCOLN CENTRE 5410 LBJ FREEWAY DALLAS, TEXAS THE PROCESS BEGINS CONTENTS ANNOUNCEMENT AND APPLICATION 2 -- ALABAMA PIP Announcement -- CALIFORNIA PIP Application -- COLORADO PIP Announcement and Application -- ILLINOIS PIP Announcement and Application -- MINNESOTA PIP Announcement and Application -- IOWA PIP Application -- TEXAS PIP Announcement and Application SELECTION PROCESS 8 -- ILLINOIS PIP Selection Rating Sheet -- IOWA PIP Selection Process -- NEW YORK PIP Selection Process/Rating Form -- TEXAS PIP Selection Criteria ACCEPTANCE LETTER 27 -- ALABAMA PIP Acceptance/Nonacceptance Letters -- TEXAS PIP Acceptance Letters LETTER OF AGREEMENT 30 -- ALABAMA PIP Agreement -- NEW YORK PIP Letter of Agreement -- TEXAS PIP Agreement REIMBURSEMENT AND PARTICIPANT SURVEY 37 -- TEXAS PIP Reimbursement Instructions -- ALABAMA PIP Initial Survey -- OHIO PIP Parti,ci.pant Survey PARTNERS POLICYMAKING ALABAMA 444 South Decatur Street Montgomery, Alabama 36104 265-0245 ALABAMA PIP ANNOUNCEMENT N.D. Received prior to 1992 Academy June 11, 1990 Dear Potential Applicants: The Alabama Governors Planning Council on Developmental Disabilities and the Association for Retarded Citizens of Alabama are currently seeking applications from interested parents of young children with developmental disabilities, and persons with a disability to participate in an exciting, innovative leadership training program-Partners in Policymaking. Partners in Policymaking of Alabama is a one-year training program designed to provide its participants information, training & skill building so that they may obtain state of the art services for themselves and others and consequently change the quality of life for, people with disabilities. Partners in Policymaking of Alabama will afford 30 participants the opportunity of training provided by national speakers addressing a variety of disability issues and empower then with competencies to make an impact on state & local policy.iaking. Our search actively seeks both males and females, members of minority communities, people who represent individuals with all types of disabilities and representation from rural, urban and suburban communities throughout Alabama. . Because we are seeking a broad patiicipation base, we will not be selecting husband-wife teams but certainly encourage individual applications. Applications for PIPA are due on August 10, 1990. Final selection of participants will be made by August 24, 1990. If you have any questions concerning this project please feel free to contact me at the above address. Betsy Prince, Director BP:mdt 1-800-237-0665 A Leadership Training Program 2 CALIFORNIA PIP APPLICATION N.D. Received prior to 1992 Academy ~ Application Deadline: 9/9/91 to the Area IV Board, 1700 Secona Street, Suite 384, Napa CA 94559 PARTNERS IN POLICYMAKING APPLICATION FOR PARTICIPATION IF YOU NEED HELP WITH FILLING OUT' THIS FORM, PLEASE CALL THE AREA IV BOARD AT (707) 252-6644. NAME: ADDRESS: TELEPHONE: ( ) 1. Are you: An adult who has a developmental disability? A parent who has a son/daughter with a developmental HCIW old is your son/daughter with a developmental disability? 2. Describe your disability (or son's/daughter's) and how it effects your life: 3. What services are you receiving? (For example: school, respite, case management, independent living skills, therapy, etc.) 4. How did you hear about Partners in Policymaking? 5. Why are you interested in Partners and what do you hope to get out of the trainings? 6. Are you willing to make a time commitment of 2 days (Friday and Saturday) during the months of October '91, November '91, January '92, February '22, March-'92, April '92, May '92, Yes No 7. Do you currently belong to any advocacy organizations? Please list them. 8. Please tell us about you and your family. CALIFORNIA PIP APPLICATION N.D. Received prior to 1992 Academy 9. What accommodations would you need to participate in Partners? (Check all that apply) Child Care Respite Interpreter Facilitator Attendant Transportation Help Special Diet Other: 10. To reflect the diversity of the North Bay, please indicate your ethnic background: Caucasion Asian Black American Indian Hispanic ***If you need more space for your answers, please feel free to use the space below as well as the back side of this page. 5 PARTNERS IN LEADERSHIP Realizing Expectations for Positive Change A Training Counselor Individuals Who Choose to Make a Bi@er D&ference "Oh dear! Oh dear! I don't want to be late." SIX LEADERSHIP TRAINING SESSIONS Presented by tbe Coalition for Leadership Sponsored by The Colorado Interagency Coordinating Counciifor Public Law 99-457 The Colorado Developmental Disabilities Planning Council "If you don't know wher you're going, and road will take you there." Illustrations by John Tenniel from Alice's Adventures in Wonderland by Lewis Carroll from the Classics Appreciation Society condensations. Copyright 1956 by the Grolier Society Inc. KEEPING PACE with the changes in our lives is a challenge for most of us. Some of us also know the challenges of having a `disability" in our own lives or in our children's lives. This course is for potential leaders who care about the future and who intend to cause positive change. Partners in Leadership is geared to helping the participants see and use their own capabilities. The course will develop and expand effective communication and vision-building skills. The course is for parents of children with disabilities (especially parents of children under age 5), consumers who use adult SUpPOfl services, and other self-advocates. 1t includes six sessions, with each session tunning from Friday evening through Saturday afternoon. Additional workshops will be held on selected Friday afternoons before the evening sessions, The course is free for the participants. Lodging, meals and travel expenses are reimbursed to the participants. This course is presented by a coalition of organizations and individuals who share a common "heart" with people who have "disabilities". The Association for Communi~' Living in Colorado, the PEAK Parent Center, and Expectations Unlimited. Inc. are working together as The Coalition For Leadership. Many of us are parents of children who have been "labeled". ,40 of us believe that people with "disabilities" have equal rights as citizens in our society. EXPERIENCES "My issues today are the same. on!)' ['w been empowered to write legislation, callpeople, muke new connections andpmist, pasist, pentit. " We would like to share with you some of the comments from Partners who have completed the Partners in Leadership course. We learned a great deal from them and are pleased by their growth and energy and commitment. "Ibaw harmed that tbe ultimate model, tbe ultimate system wili be to treat my alzugbteras apemonfht, as tjsbe bad no disabilities. l%tk vision is most impcvtant. " "I am bettwfbcused and directed. My values are chn~ed and strong. Ifeel empowred to lead and look jotward to doing more leading. " Identify their personal values and learn to see what values influence various systems and other organizations. Learn to evaluate effective residential, educational and work supports, based upon the quality of the lives of the people who are in the programs, Learn to see how they are a part of their home communities. Work out a personal plan for some positive changes that they want to see and then, begin [o work on getting those changes made. Identify what communication skills they want to improve and work with instructors to become better speakers and ~-riters. Learn about how things can change and how changes affect other people. The course is a must for parents of young children (under age 5) who have `disabilities' and self-advocates who would like to know what choices are possible and then decide for themselves. People from ethnically diverse backgrounds are strongly encouraged to apply. Forty five people from diverse geographical locations will be selected for the course. Seventeen will be adults who are self- advocates or consumers of adult support services. Twenty-eight of the participants will be parents of children with disabilities. Selection priority will be given [o parents of children who are younger than five and to individuals representing minorities. The selection process will select approximately the same number of men and women, and will include a wide variety of participants who can share their experiences with different "disabilities". The course itself will stress identifying and using each person's capabilities. Each participant will have the opportunity to work on communication skills, being assertive, being persuasive, nego- tiation skills, decision-making skills. and group facilitation, Much of the curriculum will be presented through group activities and exercises, in addition to the presentations by the faculty. Participants will have homework assignments. Some of the course work will expect participants to expand their awareness of their local community. The state-of-the-art in service delivery systems will be covered in several sessions. Of equal importance, participants will experience their own unique abilities to cause others to join them in seeking positive changes. The course includes six sessions on the dates shown below. Each session will start at 6:30 p.m., unless a different starting time is shown for that session. Session 1: Session 2: session 3: session 4: session 5: Session 6: October 25& 26, 1991 November 15 (begins at 2:30 p.m.) and November 16, 1991 January 10& 11,1992 February 14 (begins at 2:30 p.m.) and February 15, 1992 March 13& 14, 1992 April 17& 18, 1992 3 "I am so tbankful for "Partners" because my son is little and I have learned so much to help us and otbers that I feel I'm already three years ahead. " "As 1 look through my notes, I'm orerwhelmed bywhere I started and where I am now I thank you so much for tbe giffts you have given me... the gifts of "ways & means"...the skills of negotiating, the assertiveness and decision-making skills you have helped to sharpen. The parameters you have helped so ably to define. Thank you for the opportunity to meet so many people, to begin the networking process." "This course has informed me immensely on many topics. " "I have learned so much, especially about myself. I realized that in the beginning I had my own prejudices and thoughts of limitation that I wasn't previously aware of. I have learned practical ideas and been shown new creative approcahes to learning and thinking. but I think the greatest gift for me has been that I have been allowed to see the true spirit in some of the people I have met here." Interested individuals should complete and mail the application form to the address below, individuals may also apply by making an audio or video recording (VHS format) which includes the information requested on the application form, The recordings should be mailed to the address below. Application forms and audio or video cassettes will not be returned to applicants. Letters of support are optional. Applicants can arrange to have up to three letters of support sent to the address below, if the applicants feel that those letters would provide additional information w-hich would be helphd to the selection committee. APPLICATIONS SHOULD BE MAILED TO: . . ACL IN COLORADO, PARTNERS IN LEADERSHIP 4155 EAST JEWELL, SUITE 916, DENVER, CO 80222 Step 1, Fill out the application form and send it in, to arrive by August 30,1991. Step 2. Ask anyone you want to provide a letter of support for you to send a letter to the address above. Step 3. Acceptance letters wjll be sent to the selected applicants by September 20, 1991, Deadlines for Applications Applications must be received by August 30, 1991 at the address indicated above. Letters of support should also arrive by this deadline. Applications received after this date will be considered, subject to the availability of space. T raining Location The course will be held at the Denver Sheraton Tech Center, Participants will receive additional information upon their enrollment. If You Have Questions... You may call Partners in Leadership to ask questions abou[ program details or to obtain additional application forms, If )'OU would like assistance in filling out the application, please call us. Our telephone number is: 303-7567234. Out of Town: 1-800-333-7690. 4 Participants must agree to attend each of the six sessions and to work on all homework assignments between sessions. v participants must be highly motivated and willing to use the knowledge they acquire. v participants will be expected to identify personal goals to be achieved during and after the training. v Participants will be asked to share their progress in striving for their goals. v participants will be expected to work on facilitating the formation of coalitions and networks, in the class and in their community. Those participants wanting assistance with course materials or activities through readers, interpreters, physical facilitators, etc., should describe their needs on the application form. This course is intended to be available through personalized accommodations, to all qualified indi~'iduals. We will make every reasonable effort to respond to such requests. Participants will be provided with lodging and meals from Friday at 6:30 p.m. through Saturday afternoon. Rooms will be double occupancy. Travel mileage will be reimbursed at $0.20/mile. Participants will be encouraged to travel together, when possible. Participants traveling more than 200 miles one way may be reimbursed for airfare. Parents having childcare expenses due to attending this course will be reimbursed up to $40 per session. Arrangements can also be made for a partial lost-income allowance, in situations where participation in the course causes wages to be lost, Participants using personal care assistance may be reimbursed up to $150 per session for such services. Hotel accommodations and group meals will be offered to personal care assistants. In summary, the curriculum for this course is intended to be personally challenging to each of the participants. We will attempt to accommodate individual needs, to enable participants to focus their efforts on the activities and assignments of the course, National speakers and faculty members ~"who know" the "state-of- the-art" will share personal perspectives and visions for the future. Participants will learn about building coalitions. Participants will learn to help friends understand their concerns and how they can be of help. Participants can become more effective in working with the people in the "systems" they rely upon. Participants will learn to create and expand their own personal networks. 6 Please fill out the application form, detach, and return it to Partners in Leadeship to arrive by August .?0, 1991. 1. Name Address City State Zip Code Telephone 2. Please cbeck appropriate boxes: O Male Caucasian Native American O Female O African American Asian-Pacific O Hispanic O other .3. If you are the parent of a child who has been identified as haveing "special needs" or a "disability" please indicate the child's age as of August 30, 1991. Birth through age2 Age 12 years through age 14 years Age 3 years through age 5 years Age 15 years through age 21 years Age 6 years through age Il years 4. Do you feel tbat you are able to represent a particticular disability"? If so, please comment. 5. Do you have a need for special assistance oraccommoalztions, penorud assistance, reading, communication, tpecial diekwy needs, a translator in sign language or anotberianguage, physical accessibility needs, etc.? Please comment. 6. Please attach a separate sheet of paper witb your name and responses to the following questions: a. Why do you want to attend this trainingprogram? b. Please share additional information about youwself such as your work preferences, your recreational interests, your experiences in leadership, your experiences in causing positive change, etc. Optional If you would like to provide a brief personal biography (up to 2-3 pages in length) please feel free to do so. This is not a requirement of the application process and may be done instead of answering question 6b above. Mail completed application to: Association for Community Living in Colorado Partners in Leadership 4155 East Jewell, Suite916 Denver, CO 80222 Phone: 303-756-72.34 ILLINOIS PIP ANNOUNCEMENT AND APPLICATION UIC N.D. Received prior to 1992 Academy The University of lllinois at Chicago Illinois University Affiliated Program in Developmental Disabilities (M/C 627) 1640 West Roosevelt Road Chicago, lllinois 60606 (312)413-1647 June 17, 1991 Dear Interested Person. The Illinois University Affiliated Program in Developmental Disabilities and the Association for Retarded Citizens of Illinois are currently seeking applications from interested parents of children with developmental disabilities, or persons with a disability, to participate in Partners in Policymaking. This is a one-year leadership training program designed to involve the participants in active efforts to improve the quality of life for people with developmental disabilities in Illinois. Well-informed and organized parents and individuals with disabilities have historically had a powerful influence on policymaking. This program actively seeks both males and females, members of minority communities, people who represent individuals with all types of severe disabilities and from all areas of the state. Beacuse of our desire to have as broad a participation as possible, we do not select husband wife-teams. Expenses are paid for travel, lodging, meals, support services or respite care. A series of eight conferences will take place at the Matteson Holiday Inn just south of metorpolitan Chiciago, once a month on a Friday and Saturday. The first training session will be held on August 23rd and 24th, 1991. Attendance at all sessions is mandatory Selection will be made based on the quality of the applications. Applications are due on July 20th, 1991. Final selection will be made by July 31st, 1991. Inquiries about this program can be di.rectred to either Joyce Bertram, Program Director (312/413-1975) or Juana T. Garate, Project Coordinator (312/413-4097) at the above address. We would appreciate your assistance in identifying qualifed applicants. Please share this information with other interested persons. Thank you in advance for your assitance in seeking qualified applicants. Cordially, Fabricio E. Balcazar Project Director DEVELOPMENTAL DISABILITIES DEFINITION The term "developmental disabilities" means a severe, chronic disability of a person which -- a. is attributed to a mental or physical impairment or combination of mental and physical Impairments; b. is manifested before the person attains age twenty-two; c. is likely to continue indefinitely; d. results in substantial functional limitations in three or more of the following areas of major life activity: i. self care ii. receptive and expressible language iii. learning iv, mobility v. self-direction vi. capacity for independent living vii. economic self-suffi.c%ency e. reflects the person's need for a combination and sequence of special, interdisciplinary, or generic care, treatment, or other services which are of ILfelong or extended duration and are individually planned and coordinated. Source: Developmental Disabilities Act of 1987 (P.L, 100-146) 7 ILLINOIS PIP ANNOUNCEMENT AND APPLICATION N.D. Received prior to 1992 Academy PARTNERS IN POLICYMAKING APPLICATION FOR PARTICIPATION NAME ADDRESS ZIP CODE TELEPHONE Daytime - ( ) - Home - ( )--- MARITAL STATUS Married- Single - AGE - Male Female RACE\ETHNIC BACKGROUND ANNUAL HOUSEHOLD INCOME under $20,000 $20,000-$50,000 - S5O,OOO-$1OO,OOO over 100,000 1. Are you a person with a developmental disability? Yes No If yes, please describe your disability: mat services (case zaanagement, supported employment, etc.) are you currently receiving? 2. Are you a parent of a son or daughter with a developmental disability? (Please indicate if you have more than one child with a disability.) Yes No If yes, how old is your son/daughcer? What senices (school, respite care, case management etc. ) is s/he currently receiving? Please indicate the name Of the organization(s) pro- vidinz services. Describe the school placement: 3. Do you have other children? Yes NO If yes, what are their ages? 4. What specific issue, area of concern or problem leads you to apply for this program? In what ways have you been actively involved in addressing this issue, concern, or problem? 5. Will you make a time commitment of two days per month on a Friday and Saturday during the months of August, September, October, Novembez, December, January, February, and March, 1990-91? yes NO Current employment: Describe the disability and how it affects the ability of your sonldaughter to function in at least three (3) areas of major life activity: 8 6. will you travel to the metro area to attend the regularly scheduled meetings? (all expenses will be reimbursed) Yes NO ." 7. Are there any special accominodations necessary for you to participate Ln this program? -yes No If yes, please describe (accessibility, interpreters, respite, etc.) 9 -. nave you been involved with any disability groups, advocacy organizations, or other agencies? If so, please list them. (Membership in other groups is not a requirement.) 9. Please tell us a'little about yourself and your family. 10. Please list the names, addresses & phone numbers of three individuals who know of your interest in disability issues. 11. Please indicate how you learned about the Partners h Policymaking project: ********************************* *ILLINOIS PIP ANNOUNCEMENT AND APPLICATION! : * N.D. Received prior to 1992 Academy $ ******************************************* 10 Please "note that these applications wL1l be individually rated by a panel of screeners. Applications vill be rejected if: 1. ?eople are not able to meet at the designated times; 2. if they do not fit the definition of developmentally disabled; ? -. if they are deemed too lmovledgeable\active in developmental dlsabtlities; 4. as the population of Illinois, the group vill be varied by disability, ~eographic region, age of the person vith disabilities, race 15 sex. inquiries about this program can be directed to the folloving individuals: Fabricio E. Balcazar, Ph.D., Principal Investigator Joyce Bertram, Program Director Juana T. Carate, Project Coordinator Gi?/DD ~z~v~rsicy of Illinois, Chicago :540 x. Roosevelt Xoad :hicago, Illinois 60608 WE The University of lllinois at Chicago llimotsU nwersltyAHiliated Program tnDevetopmental DEabthtIes(M'C627) l&u3Wes! Roosevelt Road Chl-go. lIlmols6C608 11 Governor's Planning Council on Developmental Disabilities Partners in Policymaking Partners in Policymaking teaches people to be community leaders.l%e program is designed to provide information, training, resources and skills building to parents of young children with disabilities and to people with disabilities so that they may obtain the best available services. The program is open to a limited number of interested people at no COSL "The training, education and support I received has given me the tools to advocate for my son and it has opened my eyes to the needs of everyone with disabilities. " WHAT DOES IT GIVE YOU? This program will give you the opportunity to meet and talk to international and national leaders in the field of developmental disabilities. You will learn to understand and help change public policy. It will acquaint and connect you with organizations, oppo~nities and possibilities. The program will educate you about current issues and state-of-the art approaches as well as how policies are made at local, state and national ievels. The overall go~ is to reach a productive partnership between undersenwd and unsemd people who need and use services for developmental disabilities and those people who make public policy. "This program is excellent because it empowers people with disabilities to pursue their own agenda. " You will attend two-day sessions, approximately eight times a year, between January and September. During each session, experts in specific areas will present up-to-date information and discuss recent breakthroughs. The sessions begin on Fridays, shortly after the noon hour and conclude on Saturdays late afternoon. There is ample time to converse with the speakers in either small groups or on a one-to-one basis. A maximum number of 35 people will be selected to a~tend the program. A screening process that attempts to obtain a balance of people (people of color, low income persons, single parents, person representing a variety of disabilities, gender) will bo used to select participants. All participants are paid for their travel, personal assistance semices, respite care, and child care. Lodging will be provided if you live outside the metro area. Meals are also be provided. Each session is devoted to a specific topic or level of government. you will be expected to complete assignments between sessions and to complete a major assignment (such as serve as an intern with an elected or public official) by the end of the program. Partners in Policymaking will train and educate you in the following: The history of the parent movement, self-advocacy, and independent living movements The reasons for integrated, quality education (including post-secondary) for people with developmental disabilities The importance of whole life planning State-of-the-an technologies ?or people with severe physical disabilities How to analyze your county CSSA plan, case management and the strategies used in the county planning process Creating homes and family support + The importance of employment and careers o Critical federalktate issues and the process by which you can channel your :cncerns + Necessary skills for provic!i.ng testimony or meeting with public G;':.:::.;. + ~~~~~=-.2~;j. ,,. ~ -'o"== for advocating for SI=MCPS4, -There is a growing movement toward integration in public schools, an increasing demand for inclusive communities, and a greater effort for fuIl accessibility for people with developmental disabilities all across Mimesota. Although segregation is decreasing, many people are still unserved or undersenmd. Partners in Policymaking needs you to help move our education systems, supported living programs, employment opportunities and technologies towards excellence. Your involvement will create solutions, and promote improvement in Minnesota's service "I am now proactive rather than reactive. Partner> hos changed the way I act, [ook and speak on issues. " If you feel the ne@ for increased skills in leadership; if you want to share and develop a collective vision for the year 2000 and beyond; if you want to ixet and dis'cuss issues tith leading experts in the field of developmental disabilities; if you want the opportunity to develop grassroot efforts to affect public ofilcials; if you want the chance to see and experience the newest technologies and practices available; if you want to understand the various social service systems and how to access needed support; if you want to be as ef&ctive as possible so that you can influence government processes and policies you should apply now! "Partners has done a rernurkable job of increasing my confidence, knowled~e and skills. " -u For more information, contact David Hancox at 612/349-2559 or ~< ~ 1"7~':.99fj2 TDD T* UIW3S@ send yobl~ application to: Governor's Planning Council on Developmental Disabilities 300 Centennial Building 658 Cedar Street, St. Paul, MN 55155 This program was funded under provisions of the Developmental Disabilities Act of 1990 (P.L. 101-496). Content of this program does not necessarily reflect the position or policy of the Gdvernor"s Planning (Xxmcil on Developmental Disabilities nor that of the Department of Administration. APPLICATIONS ARE DUE BY DECEMBER 16, 19S1 APPLICATION Address Phone (H) m Are you a parent of a son or daughter who has a developmental disability? Please indicate if you have more than one child w"th a disability. Yes a No O Age(s) IF YES: Describe the disability and how it affects the ability to function in at leastlhree of the areas of mapr life activity: W5at ~~p{i~~s are you currently receiving (school, respite care, case management, etc.)'? Describe school placement: Do you have other children? Yes o No O How tiny? Age(s) Are you a person with a disability? Yes O No O Why are you interested in the program? Is there a specific issue, area of concern, or problem that encourages you to apply? Will you make a time commitment of two days (Ftiday/Saturday) during the months of January, February, March, April, May, June, July and Septembefl Yes O No O Piease sand your application to: Governor's'Pianning Council on Developmental Disabilities, 300 Centennial Building, 658 Cedar Street, St. Paui, MN 55155 Current em@oyment: Will you travel to the metro area to attend regularty beduled meetings? Yes O No Aw Vwre any special accommodations newssary for you to participate? Yes O No o Please describe (acxessibiiity, interpreter, respite, etc). .. ..,,. . . . . . Do you currently &long to any advocacy organizations? If so, please list. Memberships are NOT a requirement. `Please tell us a little about yourself and your family. List two to three refererices (name, address, phone). Please indicate how you learned of the program. ****************************** * : IOWA PIP APPLICATION $ ; N.D. Received prior to 1992 Academy * ***** ** *****A** *A*** ** * *** ***z PARTNERS IN POLICYMAKING APPLICATION FOR PARTICIPATION NAME ADDRESS ZIP CODE TELEPHONE Daytime - ( RACE/ETHNIC BACKGROUND ) Home" ( )- AGE (Optional) ****************************************************************** 1. Are you a person with a developmental disability? Yes No If yes, please describe your disability: fi?hat services (case management, supported employment etc.) are you currently receiving? 2. Are you a parent of a son or daughter with a developmental disability? (Please indicate if you have more than one child with a disability.) Yes If yes, how old is your Describe the disability Yes son/daughter? and how it affects the ability of your son/daughter to function in at least three (3) areas of major life activity: 12 What services (school, respite caret case management~ etc.) is 3. 4. 5. 6. 7. she/he currently receiving? Describe the school placement: Do you have other children? Yes No If yes, what are their ages? Why are you interested i.n participating in the Partners in Policymaking project? Is there a specific issue, area of concern, or problem that encourages you to apply for this program? Will you make a time commitment of two days (Friday and Saturday) five times during the months of October, 1991 through May, 1992? Yes No Current employment: Do you anticipate any problems with getting Yes No Will you travel to Des Moines to attend the rneetin9S? (expenses Will be reimbursed)? Yes No Are there any special accommodations participate ,in this program? Yes No time off from work? scheduled for you to 8. 9. 10. If yes, please **************************************%** ii * * IOWA PIP APPLICATION ~ N,D. : - Received prior to 1992 Academy ~ ****A**fi**************~**********~******* describe (accessibility, interpreters, respite, \ t?tL-.J Do you currently please list them organizations is belong to any advocacy organization? If SO, and any offices. Membership in other not a requirement. Please tell us a little about yourself and your family. Please list the names, addresses and phone numbers of three references. 14 11. Please indicate how you learned about the Partners in Policymaking project: 12. My home-town newspaper is: (Name) (City) ( Signed) (Date) Return by September 16, 1991 to: Sylvia Piper, Project Coordinator Iowa Protection & Advocacy Services, Inc. 3015 Merle Hay Rd., Suite 6 Des Moines, Iowa 50310 15 *************** **************** ****** Texas Plannin *N.D. Received prior to 1992 Acaderny~ g council * ************************************* for DeveIopm&Mil Disabilities 4900NorthLarnarBoulevard,Ausdm Tex*787S1-2316 LeeVeenkeGChaixraan (512) 4834080 TDD (512)4834099 Shenikwa COX Vice Chairman Roger A. Webb, Executive Director March 10,1992 DD Council Seeks Participants for Partners in Policymaking Program Partners in Policymaking is an innovative model of leadership training for self-advocates and parents. h provides state-of-the-art knowledge about development disabilities issues and builds the competencies necessary to become advocates who can effectively influence public ofkials. The Texas Planning Council for Developmental Disabilities is currently seeking applications horn inter- ested people who have developmental disabilities or parents of young children with developmental disabili- ties to participate in Partners in Policymaking. This program is designed to provide information, training and skill building so that participants may obtain the most appropriate state-of-the-art semices for them- selves and others. The program educates participants about current issues and best practices and familiarizes them with the policymaking and legislative processes at the local, state and federal levels. The overall goal is tu achieve a productive partnership between people needing and using services and those in a position to make policy and law. "Partners" attend 2-day tmining sessions eight times a year with each session beginning Friday at noon and concluding late Saturday afternoon. Each session is devoted to specific topics with nationally known experts as presenters. "Partners" are expected to complete assignments between sessions and also commit to one major assignment such as setig an internship, organizing a letter writing campaign, or organizing special receptions or town meetings for public officials. ~ . . Session topics include: * m * * * m * * History - Independent Living Movement, Parent MovemenG PeopIe First Movement Education - Inclusion and Quality SUppOrtd Living, Personal Futures Planning, Family SupporL SUppated Employment Assistive Technology, Seating and Positioning, Challenging Behavior State Legislative Issues Federal Policy and Legislative Issues Advocacy Organizations and Efforts, Community Organizing Parliamentary Procedure and How to Take Control of Meetings Planning and advocating for independence, productively and co nunum"ty iruegration An E@ @Qalumt " y rill#Jycr The Council is actively seeking highly motivated men and women to participate in the Partners in Policy- making prognun We are particularly eager that the membem of the group represent W%rent ethnic back- gmunds,clifferent geographic regions of the state andavariety ofdkbilitkso Also, wearecspecially interested in reaching persons who are not actively involved in existing advocacy organizations. Please feel &to make copies of this packet fmd.insemination to interested individuals or call the DD Council to obtain additional copies. Expenses for traveI, lodging, meals, nxpite care and attendant services for pm = Pficip~ts ti be ~imb~ Applications ~bepostmarked by May 15, 1992, to reeligible. Final selection will be made byhly 1, 1992. Monthly training sessions will beheld fmm September to May, excluding lkcember. Fax copies will not be accepted. Applications also are available in braille, large print, ASCII andon audio cassette. To obtain alternate formats, please contact: Jopie Smith Texas Plannin g Council for Developmental Disabilities 4900 North Lamar Blvd. Austin, Texas 78751-2316 (512) 483-4089 or (512) 483-4099 (TDD) Partners in . . ,. ,. n . . . . . . . . ,. ,. ,. ., ., . . ,, ,... * _ . . ., . . - ,. . . - _ ~,. ~ ~ ~ ~ ., _ _ _ _ ~ * * TEXAS PIP APPLICATION $ - Received prior to 1992 Academy ; *~*** ***** ***** ***** ** ** * * Policyrn*a~mg Application for Participation Application Deadline: May 15, 1992 Name: Address: Zip Code: Telephone: ( ) Daytime Number: ( ) Are you: Male Female Ethnicity: 1. Are you a person with a developmental disability? (See definition on back page.) -YEs NO Age: If yes, please describe the disability (or disabilities): 2. Are you a parent of a son or daughter with a developmental disability? (If you have more than one child with a ~sability, please answer for each child. See definition of "developmental disabilities" on back page.) YEs NO Your age: If yes: a. Describe how the disability affects the ability of your sorddaughter to function in at least three (3) of the areas of major life activity (Part "D" of the definition): b. How old is your sorddaughter? c. What is the disability (or disabilities)? 2. 3. 4. 5. 6. 7. Continued: d. What services (school, respite care, case managemen~ etc.) is your sonkiaughter currently feceiving? e. Describe the school placement: f. Does your son/daughter live at home? Do you have other children? YEs NO If yes, what are their ages? YEs . Why are you interestd in participating in the Partners in Policymaking program? Is there a spa'ific issue, area of concern, or problem that encourages you to apply for this program? Will you make a commitment to attend eight 2-day sessions, held monthly from September to May, except December? YEs NO Will you travel to Austin to attend the regularly schechded meetings? YEs NO 8. Are you willing to do homework assignments (primarily reading)? YEs NO 9. Are there any special accommodations necessary for you to participate in this program? YEs NO If yes, describe accommodations needed (accessibility, interpreters, respite care, attendant services etc.): 10. 11. 12. Please list any memberships in advocacy organizations and indicate any office held. (Membership in other organizations is w a requirement): What types of experience have you had in advocating for people with developmental disabilities? Please tell us a little about yourself and your family: 13. Please list two reference-names, addresses and phone numbers: 1. 2. 14. Please indicate how you learned about the Partners in Policymaking project: Please mail the completedform to: Jopie Smith Texas Planning Council for Developmental Disabilities 4900 North Lamar Blvd. Austin, Texas 78751-2316 (512) 483-4089 or (512) 483-4099 (TDD) -------. Developmental Disabilities Definition The term "developmental disabilities" means a severe, chronic disability of a person 5 years of age or older which -- (A) is attributable to a mental or physical impairment or a combination of mental and physical impairments; (B) is manifested before the person attains age twenty-two; (C) is likely to continue indefinitely; (D) results in substantial functional limitations in three or more of the following areas of major life activity: . self care, . receptive and expressive language, - leaning, . mobility, . self-di~ction, - capacity for independent living, and . economic self-sufficiency: and (E) reflects the person's need for a combination and sequence of special, interdisciplinary, or generic care, treatment, or other services which are of lifelong or extended duration and am individually planned and coordinated; except that such term when applied to infants and young children means individuals from birth to age 5, inclusive, who have substantial developmental disability or specific congerdtal or acquired conditions -with a high probability of resulting in developmental disabilities if services are not provided. Source: Developmental Disabilities Assistance and Bill of Rights Act of 1990 (P.L. 101496.) SELECTION PROCESS RATING SHEE1 APP.# Gender Age Morltrrl Ethnic Income Dkobility Age & Gendef Meets Level of Afflllated Nrsrratlve IaTtdl of APP. of APP. Sfalus Background level MR/MR+ of krd. w/dis Crlte[la Activism Organlzaflons Rate 1-10 ILLINOIS PIP SELECTION RATING SHEET N.1). - Received prior to 1992 Academy ***************************************** * IOWA PIP SELECTION PROCESS * * * ~ N.D. - Received prior to 1992 Academy ~ ***************************************** PARTNERS IN POLICYMAKING Participant Selection Prbcess' and Criteria The Partners in Policymaking participants will be selected using the following process: 1. 2. 3. 4. 5. Project announcements and applications will be sent out on October 15, 1989 to interested agencies, organizations, and individuals. The project has been and will be announced in a number of state newsletters, and project staff will be issuing a news release to the Des Moines Register. Potential applicants will complete the application and return it to the Protection & Advocacy office. Multiple copies will be sent to agencies and organizations for distribution. Applications will be returned to Protection & Advocacy on or before November 15, 1989. By November 30, 1989, Partners staff and Steering Committee will meet to review and select project participants based on this criteria. By November 30, 1989, all applicants will be notified regarding the results of this selection process, and contracts will be sent to those applicants selected to be participants in Partners in Policymaking. The criteria, as recommended and developed by Partners in Policymaking Steering Committee and staff persons, are in place to develop a balance within the group participants. The `requirements for participants are: a. The applicant is a parent of an individual with a developmental disability; or b. The applicant is a person with a developmental disability. c. The applicant will have limited or no experience with policymaking. Beyond these participant requirements, the Steering Committee and Partners staff will be reviewing the applications of the participants to achieve a balanced group in:" 1. The applicants' geographic locations. 2. Applicants' sex. 3. Applicants' race or culture. 4. Specific developmental disability which affects the applicant and/or their family. 17 5. Applicants' child with a developmental disability. 6. Age of the applicants' child with the disability. In order to address the question of experience in policymaking, the application asks for three personal references, an indication of how the applicant learned about Partners in Policymaking, a statement of interest in participation in the project, issue or concern identification, list of memberships and organizations, list of other committees or task forces in which the applicant has been involved, and a listing of significant classes or workshops which the applicant has attended. 18 - - - - - - - - - - - - I T I T i for Individual with a Disability FP for Foster Parent CO1"J mn 2 - Column 3 - CO1'J mm 5 - Sender - .'+,~e - 3isability Group k! ?t enter an X if ap~i icant rear ese nts so -neovle i'Jho is merltailv retarded "~t~er . enter ot.+er tv~e of disab ili `LV rearesenteti Local 5 = enter an X if indi\i5ua! 1 ives ir, suburban 2:ea L' = enter an X if individual lives in urban area F?. = enter an X if individual lives in rural area Level of Activism Review the information ~rovided by tfie a~~!icant to determine the levels of his/5er advocacy activities w involvement in rela?ed co m, nun ity .Dr ogra rns. IFL. ter an `X `under "H" lf the individual a?pears to have a high level of activity, an X under the "L" if the indi'~idual fias a !17!1 j f ~,21J are ..jn ~~ !e to ma+e 2 low level of activitv or an X under . detpr !min~ti~n >ased on The Ii ~ited arnoun: of iniarmaticn on tje application for:mo Gender and Age Insert "F" for female or . ~~\ql~ for ,ma le o f tj e i n d iv idu al m ~!e narrative inforrnatio~ ~rovided by the a~~licant, ~t will be necessary to assign a subjective, nunerical rating to its contents `v~t!l "l" being the lowest rating and "10" beinq t~e highest. This ratin: will be based on a determination Of t+e individual's pur~ose for apolvin?, aaility to fully ~artici~ate in all sessions, and interest in becominq 3:7 advocate. Column 8- Meets iksic criteria Review all entries made on this form for the apolicant and Dut an X in the "Yes" colu,mn if he/she meets the basic recruitment criteria, or an X in the "No" column if he/s5e does not. For exa-n~le, if vou had determined as one of your criteria t$at al] oarticigants should begarents then anyone, not a ?arent, would not meet t3e basic criteria. Column 9 - Rating In revie",ving the information available on each an~licationj an eve-all rating should then be assigned. If the ao~licant does not. meet t+e basic crl terla or received very low scores in the narrative rev ie.v enter an X in the "No" column. - If the individual met all criteria and a~pears to h a gOd candidate ~~t an X in the "Yes*g column. Enter an X under tfie "?" if you are unsure at this time about the person's interest, abi!ity, or aDDrorriateness as a participant. 21 Partners in Policymaking Application Number RATING XIRM FOR APPLICATIONS Rating (1, 2, 3) Comments NEW YORK PIP WTING FORM - Received prior to 1992 Academy 8/24/90 22 ***************************************** * * * NEW YORK PIP RATING FORM * ~N.D. - Received prior to 1992 Academy ~ ***************************************** ilecruitment ProCeSS Overall Rating Form Please list the serial numbers in priority order of the 50top applicants you have identified. We :~ili then do an analysis of all your responses to compile a Master List. Begin with outnumber lto enter thenuinberof your top priority. L 2. 3. 4. 5. 6. 7. 8. 3. 1!). 11. 12. 13. 14. 15. 16. 17. 18. 19. 20. 2L 22. 23. 24. - 25. 26. 27. ~& 2!3. 30. 3L 32. 33. 34. 35. 36. 37. -. 38. 59. 40. 41. 42. 43. /+!+. 45. 46. 47. Llg. 23 $*****#+********************#***********g * * TEXAS PIP SELECTION CRITERIA 2 : N.D. - Received prior to 1992 Academy ~ ***************************************** PARTNERS IN POLICYMAKING Selection Criteria o Minority representation o Rural/Urban mix o Good geographical representation o Not involved in advocacy organizations/New blood o Gender -- Male/Female mix O Cross disability representation o Motivated for systems change versus personal gain o Pro-community o Enthusiasm for learning o Evidence of commitment to long-term advocacy efforts o Age -- Parents of children 5 and under most preferable -- Consumers under 35 most preferable 24 **************************************** * * TEXAS PIP SEL5CT10N CRITERIA % - Received prior to 7992 Academy; z*:;:;i********************************* PARTNERS IN POLICYMAKING SELECTION CRITERIA Consumers NAME Best Practices 1. Recognition of importance of Independence, Productivity, Integration. (+10) 2. Understanding or willingness to learn that most services do not reflect best practices. (+10) Advocacv 3. Commitment to long-term advocacy efforts. (+10) 4. Support for system change strategies versus personal gain. (+10) Other 5. Unique circumstances or personal history. (+15) Personal Characteristics 6. Minority applicant. (+8) 7. Minimal prior advocacy ~PCDD\WORD\JS\SEL-CR IT. DOC experience. (+5) TOTAL 25 PARTNERS IN POLICYMAKING SELECTION CRITERIA Parents/Famfly Members NAME Best Practices 1. Recognition of importance of Independence, Productivity, Integration. (+10) 2. Understanding or willingness to learn that most services do not reflect best practices. (+10) Advocacy 3. Comnitmnt to long-term advocacy efforts. (+10) 4. Support for systen change strategies versus personal gain. (+10) Other 5. Unique circumstances or personal history. (+15) Personal Characteristics 6. Minority applicant. (+8) 7. Father of individual with disability. (+5) 8. Minimal prior advocacy experience. (+5) 9. Son/daughter age O-5 years. (+6) Son/daughter age 6-10 years. (+4) TOTAL *** *h ** *h *kkAA*h *Akkkkkk&* *k& *k+ * * : TEXAS PIP SELECTION CRITERIA 2 ~ N.D. - Received prior to 1992 Academy ~ * *h********* * *** *~ * **&**~**&* * * 26 ;**************************************** * * ALABAMA PIP ACCEPTANCE LETTER * * $ N.D. - Received prior to 1992 Academy ~ ***************************************** October 2, 1990 Dear Participant: As you. are well aware by nowL ?. you have been selected to be ,a artlclpant In Partners m Pollcymakin 8 of Alabama, a leadershl rainin program sponsored by Alabamans ? overnorls Planning Counci Y on Deve opmental Disabili.ties and the Association for Retarded Citizens of Alabama. As you know, P.I.P.A. 1s a nine month prcgram to increase empowerment and \m rove the self-advocacy skills of \ adults with %~%ifi~~~%en `lt parents of developmental disabilities and We received over 110 applications and the Candidate Selection comm;ttee had an enormous job in narrowing the field. Each appllcat.ion, held a compelling message and conveyed a tremendous state-of-the-art information ~~=~bil~~~~~n an$l~~~m~ppo$%\nities that could make a significa~~ impact in their own lives and the lives of their children. Congratulations on your selection and on having the o portunity of i! acqui~ln<] such valuable information and advocacy tec ni.ques. Enclosed you will. find a tentative schedule, a ma 5 and other important ln~omatlon. We will make arran ements for ao:t~~~gni ht aCCOTHn0CL3tiOIlS for participants ? trave ing from z he l~ont omer~ area. ? Please allow us to make all contacts with the hote . ~f you have any conflicts, please contact me as soon as possible. I have had the cpportunit 1 of speaking with each of you on the phone and it is evident t at we share enthusiasm and excitement over this new project. I hope that I addressed any questions or concerns that you may have regardintgoP. ~h~.A. I spok~n~ith many of you concerning accessibility hotel personal accommodations that you miqht need in order to attend. Letls continue working together In addressing your needs aqd making necessar 1 adaptations so that your trip to Montgomery WI1l be as comforta le as possible. Please feel free to contact me if there are any questions left unanswered. Also enclosed youwiilnl f/:cl: l~;t of participants. We s~;~::dto ensure a ba!lance % geo raphy, gender, of disabilities, parent/consumer represen atlon, and othq=. If You wish to contact anyone prior to our first academy regarding travel, networking etc. , please feel free to do so. Please review all of the enclosed materials and again if you should have any questions regarding an of itts content, please call me. Again, congratulations, $ I look orward to rneetlng J ou and working with you on this exciting mnovatlve pro]ect. ogether we can make a difference in the fives of individuals with developmental disabilities and their families. See you on October 19! Sincerely, Betsy Prince, Director 27 September 6, 1990 Dear Partners in Policymaking Applicant: Thank you for submitting your application to participate in our leadership training program, Partners in Policymaking of Alabama, sponsored by the Alabama Governor's Planning Council on Developmental Disabilities and the Association for Retarded Citizens of Alabama. Each application. held a compelling message and conveyed a tremendous need within Alabama for state-of-the-art information on disablili.tes and new opportunities that could make a significant impact in the lives of people with di.sabiliti.es and their families. We are sorry to inform you that you were not ~e~ec~e~ t. be a participant in this yearls project but thank YOU .c,.., .- "T='= ~~our +L 1.,.... .,i~.. -, anc? interest. \7p- are pl. easeci to say that we rece~.';ed more than 112 applications from interested parents and individuals with disabilities. Each application shared enthusiasm and we sincerely wish we could have .lcce;>ted all those whc applied. It only confirmed the need for sucha quality training program here in Alabama. We strived to insure a balance in terms of geography, gender, types of disabilities and parent/consumer representation. Taking all of these factors into consideration, it was a very difficult selection process. Since we limited our number of participants to 35, our Participant Selection Committee had to make some very difficult decisions based on the above factors. Again we thank you for your interest and time in completing our application. Our hope is that with the success of PIPA, we will be able to continue this leadership program and you may again have the opportunity of applying. We will be disseminating P.I.P.A. information periodically, if you do not wish to remain on our mailing list, please contact me as soon as possible. If I can be of further assistance to you in the future, please feel free to contact me. Sincerely, Betsy Prince, Director BP:mdt 28 =1.isabili,ies Texas Planning Council for Developmental 4909 >wth Lamar Boulevard, Austin, Texas 78751-2316 Lee Veenker, Chairman (512) 463-4080 TDD (512) 483-4099 Jerijean W Work, Vice Chairman Rnger .4. Webb, Executive Director June 18, 1990 ***** ************************* *********** * * * TEXAS PIP ACCEPTANCE LETTER * ~ X.D. - Received prior to 1992 Academy ~ **** ******** *** * ******* *** *** ******* ***** Kathryn Snow 4008 Clayton Road Rest Fort Worth, TX 76116 Dear }!s. Snow: Congratulations! You have been selected to be a participant in Partners in Policymaking. h'e received 85 applications and the task of selecting only 30 participants was extremely difficult. AS you know, Partners in Policymaking is a nine month program designed to increase empowerment and improve self-advocacy skills of individuals with disabilities and parents of children with developmental disabilities. h'e have Enclcsed information regarding the schedule of tr?ining sessions and other -. ....-,: ~,~r,~ information. Your contract is also enclosed. Please read it =-~fully, sign ali 3 copies and return them in the attached envelope by IGIL, July `3, 1990. We will review reimbursement procedures and ground rules with j,~u durjfig the first Session. Cur first session will be held Friday and Saturday, August 24-25, at the ttouffer Hotel , 9721 Arboretum Elvd. , Austin. Registration will begin at noon Gn Friday and we will adjourn by 3:00 p.m. on Saturday. We will reserve rooms et the Stouffer Hotel for participants outside the Austin area and arrange to have them direct billed to our office. Please complete and return the participant information sheet attached so that we can niake the appropriate arrangements. If you ever have any questions about hotel arrangements, contact our office. Please do not contact the hotel directly. L'e have enclosed "A New Way of Thinking" for you to read prior to our first session. Consistent attendance is very important to a successful experience and"we require that everyone be present at all sessions. Because of limited space, we will not be able to accommodate any visitors at the Partners training sessions. Please keep that in mind if you bring family members with you to Austin. You can be reimbursed for respite care services in your home community to enable you to leave your children at home. Please let us know if this causes any problems. Please remember to return the contract and information sheet to us by July 9. If we don't hear from YOU by that time, we will assume you are no longer interested in participating in this program. Again, congratulations on being selected for our first Partners class! We are excited about this program and think it will be an excellent opportunity for all participants. If you have any questions or concerns prior to August 24, please contact Jopie Smith at (512) 483-4089. See you in August! Sincerely, Roqer;lebb Ex;cutive Di'rector 29 ,?j~n~~ng and advocating for inde~endence, productivity and community integration. An Equal Opfmiun:ty Em@mr ***************************************** * * * AL4BAMA PIP AGREEMENT * * ; N-D. _ Received prior to 1992 Academy ~ ***************************************** To Potential Applicants: If chosen as a participant in the Partners in Policymaking of Alabama program, I must understand and agree to the following: 1. I must attend all sessions: 8 two day sessions beginning on Fridays at 1:00 p.m. through 3:00 Saturday. 2. I agree to submit forms for expense reimbursement in a timely and complete manner. 3. I will demonstrate competencies through action, i.e. letter writing and phone calls to elected officials, attendance at local & state meetings, testimony before local & state bodies, submitting news articles for print and interaction with other participants. 4. I agree to keep records and submit brief monthly reports of contacts relative to or as a result of Partners in Policymaking"of Alabama. Inturn, Partners in Policymaking of Alabama agrees to: 1. 2. 3. 4. If Provide, face to face, the most up-to-date information available from national experts in the field of developmc,ntal disabilities. Provide reading materials, suggestions & resources to familiarize participants with a wide range of topics related to developmental disabilities and with information specific to identified areas of interest. Provide both role play & direct experiences at the local, state & federal levels to assist participants in their abilities to influence public policy as related to disabilities. Provide for and reimburse participant expenses generated by involvement to the fullest extent possible in return for complete participation. PIPA will provide Friday dinner and Saturday breakfast and lunch. Expenses will be paid for travel, lodging and respite care. You have any auestions relatina to these obliffations, Dlease feel free to contact PIPA at 1-800-237-0665 or 265-0245. Betsy Prince, Director 30 XXX%XX%XXX%X********%XXXXXX%X************ * * * * ALABAMA PIP AGREEMENT 3 : N.D. - Received prior to 1992 Academy ~ ** * * *** * ****** * * ********* **** PARTNERS IN POLICYMAKING OF ALABAMA CONTRACT As a participant , in the Partners in Policymaking program, I understand and agree to the following: 1. 2. 3. 4. 5. 6. I agree to attend all sessions. In the event of an emergency, I agree to contact and inform Betsy Prince- Phone - 1-800-237-0665. I agree to arrive and depart from sessions at the prescribed times, i.e., arrive at 1:00 p.m. on Fridays and not leave before 3:00 on Saturdays, unless otherwise prescribed in the schedule. I will not invite spouses, children, or other unexpected guests to Partners in Policymaking. Hotel accommodations are arranged on a roommate basis. If I desire to deviate from this arrangement, I will be expected to pay the additional room charges. Partners and Policymaking will not cover any of the additional costs. P.I.P.A. will also make all contacts & arrangements with the hotel. Per diem rates are established for travel expenses and other costs that may be associated with participation. Participants agree to maintain these per diems: a. mileage reimbursement - .22 mile b. meal costs; and c. respite care costs/attendant care costs. I agree to submit forms for expense reimbursement in a timely and complete manner. Meals, including tax and a reasonable gratuity, not to exceed $5.00 for breakfast provided that the person leaves home before 6:00 a.m. or is away from home overnight; $7.oO for lunch provided that the person is in travel status more than 35 miles from his/her home or is away from home overnight; and $10.00 for dinner provided that the person cannot return home until after 7:CO p.m. or is away from home over- night. Partners in Policymaking will provide Friday dinner and Saturday breakfast and lunch. Respite care, babysitting & personal care attendant services will be reimbursed and based upon a preapproved mutually agreeable rate that is reasonable and consistent witli the norm. I will demonstrate comDetencies throuqh action, i.e., letter writing, phone ~alls, attendan~e at local or state meetings, testimony before local or state bodies, news articles, and interaction with other participants. I will submit a `brief" report of munthly activities related to Partners in Policymaking. 31 7. I will choose one major assignment from the following list: a. Internship with Legislator\exeCUtiVe branch; b. Monitor hearings; Organize petitions\letter campaigns; :: Testify; e. organize meeti.ng\receptionS with members of Alabama Congressional Delegation; f. Other (please specify): 8. I agree to keep records and submit brief written monthly reports of contacts relative to, or as a result of, Partners in Policymaking with news media, public officials, action alerts, senice organizations and\or community programs, phone calls~ public presentations or speeches, meetings attended, and organizations joined. 9. I agree to submit estimates of my time and out-of-pocket expenses as local match for the federal grant WhiCh zpclnso]:s F::::. "I"!:'T:; ir. > l?~~i e,.~-~,,a ]?-~.r,q . - --. ..- Date Participant; s Sign2tur12 1. 2. 3. 4. Provide, faCe-tO-faCe, the most up-to-date infor:~a~~~n available from national experts in the field of develcp~.,s. r.tz~ ,?iz~.k,~~i tics. Provide reading nz+.erials, suggestions, and resource: to familiarize participants with a wide range of topics related to developmental disabilities and with information specific to identified areas of interest. Provide both role play and direct experiences at the local, state and federal. levels of government to assist participants in their abilities to influence p~blic policy. Provide for ~~r,d z-eitiatirsc expenses genez-ated by involve- Date Betsy Prince, Project Director DEVELOPMENTAL DISABILITIES PLANNING PARTNERS IN POLICYMAKING COIJNCIL Letter of Agreement As a participant in the Partners in Policymaking project, f ollo!~'ing: I understand and agree to the 10 I agree to attend all sessions. In the event of an emergency, I agree to contact and inform SW-le~Reynolds-at-1400-395-3372. 7 .-. I a:ree to arrive and depart from sessions at the Drescribec! tifn?S; i.e., a~rii'e at 6:00 p.m. on Fridays and not leave before 3:30 D.m. on Saturdays `dnless otherwise prescribed in the schedule. 3. I wilI not invite spouses, children, or other unexpected guests to Partners in Policymaking. Hotel accommodations are arranged on a roommate !xis IS. I< ~ desire to deviate from this arrangement, I will be eX?eCte~ to ~~}' ~~?~ additional room charges. ?artners in ~oli~y,~a~ing \vill not cover any `Of ~}~e additional costs. $. Per die ~ rates are esta~lis~ed ~~r travel expenses. ?~:~i~i:j i': . ` "'. " maintain these. .>. I ~~~ee to ~~~bm~t forms for expense reimb~r~ement in a t~~e!v ant -7"Y !-'"- ,.. manner-. Partners in Policymaking will provide Friday dinner an:; . . . . . ..,. ,. .,, ..( ,: . breakfast and lunch. 6. I will demonstrate cornpetencies through action; i.e., letter ~'ri~~~':~~, o:" ""`"? calls, attendance at local or state meetings, testimony before local or S: :.:Is bodies, nev's articles, and interaction with other particimnts. I w'i!.! ~'.'":~-~' ~': ` "brief" report of monthly activities reIated to Partners in Policy .makinq. 7. I agree to keep records and submit brief written monthly ~e?orts Of ConlaCTS re Iative to, or as a result of, partners in F'ol ic ymakh,g with news media, ?IJ!3 ] ~ c . . off Iclals, action alerts, service or:anizat ions and/or corn .mun It y D: 7 s a re~ult of the skills Partner's program? Definitely yes. Yes, somewhat. Probably not. Definitely no. senices. appropriate information learned Senicescurrently receiving from the 7. As a result of your participation in the Partners program, what are your general expectations? 8. Place of residence: Urban Suburban Rural 40 ***************************************** * ALABAMA PIP SURVEY * * * N.D. - Received prior to 1992 Academy f %**************************************** 9. 10. 11. Income Less than $12,000 $12,000 - $19,999 $20,000 - $29,999 $30,000 - $39,999 $40,000 - $49,999 $50,000 + Level of Education: Less than High School High School Graduate Two Years of College Four Years of College Partial Graduate Work Masterls Degree Doctoral Degree Type of disability: Self and\or child 12. 13. 14. Race\Ethnicity: Age: .- I I Afro American Native American Hispanic Caucasian Southeast Asian other Female Jnder 21-29 30-39 40-49 50+ 20 Thank you Eor your assistance. 41 ***************o ************************* * OHIO PIP PARTICIPANT SURVEY * * ~ N.D. - 1 Received prior to 1992 Academy * ****************************************** ~INVENTORYII 11/91 Bmausetiisis mouWornebaS~proj~L weneedto update ourassessrnent ofwhere projectparticipants areduringvarioustimesduringthk project. Pleaseanswerthe followingquestions. There arenowonganswers; you axerightnomatterwhatyousay. Since thelastconference,hoW manytimeshaveyou: 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. 14. 15. 16. participatedinapl anningmeetingforyourfa.milymernber? addressed your school board, counly MR/DD board or local mental health board attended a city council/county/township ~st= meeting? traveled to Columbus to attend a state-level meeting? attended a local workshop or conference? attended a state workshop or conference? attended a national workshop or conference? observed an Ohio legislative hearing? talked with your state legislator? talked with a local legislator (city council person, mayor, etc.)? testified at a legislative hearing? given a talk or speech to a group of people? participated in a local committee/task force meeting? attended a school board, county MR/DD, mental health board meeting? written a letter to a person in authority about an issue of concern to you? list any other activities/accomplishments that you have done since the last conference that are the result of this project. 42 The United States is becoming a richer mix of cul- urcs~ aqd, rnulticultjial dive'x+ifi is especially reflected `-among young childreri. NEC?T~ recogniza that this diversi~ presents boih"''oppoitunities and challenge; for people working with infants, toddlen, preschoolers and their familia and would like to support their ef- . . ,, ,. for~. ,. me demographic and statistics presented' here reinforce the already perceived need for a comprehen- sive and coordinated early childhood sptem. If this system is to be community and family based, as Public Law 99-457-the 1986 amendment to the Education of the Handicapped Act that mandates early intemen- tion sem"c= for children from birth through five-is designed [o be, it is vitally important for states and jurisdictions to create culturally sensitive and ap- propriate programs in response to the challenge of our changing society. We plan to publish a series of papers about cultural diversity. We hope that this paper and others in the future will generate discussion and give you some good ideas, as well as offering opportunities to create effec- tive culturally sensitive policies and programs and to share strategies with others in the field. Wzy look at cullural di~ersi~ and the lew demographics? For state and 1ocal planning and service agencies, various challenges related to cultural diversi~ have surfaced again and again: o o How can we, as professionals, assure repre- sentation and meaningful involvement of families from diverse cultural backgrounds in advisory groups at various levels in our states? o o o tu~_=;#ti',well a$ qitlenngvalues anctotner contr~ts, and the~:jjrn"p~c.atio"~ ?-$~:~:. j,.::;~.~~j~' :"; ".:7:.;.,::. ;.. :::, . Peobje'.of color. are:'underremesented "in" early childhood Gelds;;What s~rate~ies can we use t~ involve' more people from `dive&e "cultural back- fl~un~ in thiswprlc? . . . " Few' assessment tools have brien normed for specific cultural populations. Why haven't CUl- turally sensitive assessment took been developed? Are there other ways of measuring children's development besides nonnative assessment? Relative to thek total numbers, the rising propor- tion .of ~rican-herican, Hispanic, and other children "of qolor in poverty k troublhs. How can the needs of these children be addressed? This paper will set the stage, providing some demographic and statistical information and offering several general strategies that have been useful in making early childhood sefice systems more respon- sive. Future papers will cover' othei topics. We would like your suggestions about what those topics should be (see "We Need Your Ideas!"). We recognize that issues and concerns around cul- tural diversity are often sensitive areas, and according- ly, we have carefully chosen ideas and words based on advice from many people and from current literature. We also recognize the danger of generalizing. We know that there is great diversity within any group. General statements about a group of people have the potential to reinforce harmful stereotypes. But general awareness also has the power to build respect for cultures rooted in representations of reality that unfold from conditions different from our own. We hope that what we say will cultivate the belief "Familv" and "disability" may have va~.n~ mean- . that cultuial differences are rightfully acknowledged, . . ings in various cultures. How~owe prep-ar&profes respected, and valued. We therefore welcome your sionals at all levels to understand the different comments and opinions, as welI as your ideas and meanings of "family" and "disability" among cul strategies. As @erica moves to compete in a global economy, andto solye pressing problems in glo'bal frarne}vorks, "our watchword must be a ne'w'respectfor "tke diyersity of peoples, of cultures, and of interests. Ad while-we must' respond to-diversity across oceans" .,, , ,. and in'!erna~ion>"l boundaries, a rnore"pressing "rided ,@lbe":!o "co"rne to grips tith the growing' di;ersi~ of our own. societj right here in the United ~Sta"tes . ~.k!." F. cayazos .4,,U:S.;J5eG:$ yiry uf EducaLion Glassboro St;~e,Collegey61qiSbOro~'NiW Jersey May 18;1990 .. CHAN~I~G DENIOGRAI?HIG3 . . . . . ','~/D,ern~g~ap!I/,G .,.;:~!!Ji!G+). PYJh!!T...Yf,~.,_ na(u~~! @n-' o "nThe hhite @p'ulation'.increased only 6 `percent, .-. ..w.-. ax.~. . . . . . . . . . . . ~.-... .; ...' rifled rucia{..{:.~~d:<~a,~,d. {tl.!,{ `, Chinese Americati~ Filipinos, and the more recently ar~ived ~etnam% Hmong, Lao[ian, and Camhodian peoples. Each has a different set of cultural vaZues, beliefs, and life experiences. }Yays of perceiving, believing, evaluat- ing, and behaying (Goodenough, cited in Baca, 1986) delermine culture, rafher ihan race. " ~ote: We were someiimes unable to locate cornpara- five sta ;istics for Asian American and Narive American groups. Two s~ates have been used as ex- amples in t)zir sectw~ Texas and Mknesota. While they are not intended LO serve as national noms, thry both represenl states [hat have undergone sigmijicant demographic changes in tkepast twenty yean. A century from now, the population of the United States will be closer to the world balance: 57 percent Asian, 26 percent white, and 7 percemt black. (People . . of Hnpamc onp.n iza y be of an;: iace, e.g., N"ative American, white, black, et::.). We are in [he middle of a popu~ation shift, with predictions that one third of us will be "minority" persons by the year 2000 (Zeller, 1986). Statistics supporting this trend are: . Between 1970 and 1980, acccrding to the U.S. Census Bureau, Hispanics increased in number by 61 percent, and it is e-sfirnatcd that the Hispanic population has grown anu~her 30 percent since 1980 (Minority issues, 1987). . /- . . ::-- - -, ` , o `~In 1982; "it'waspre'dlcted that the-Asi&-American ~~~pulation"~would more "~~hn'pdouble in fifteen years @~~'cit&d in Char+ 1986). ` `An example of a dramatic increas"e in Aian- Americans in certain areas of the United States in~ eludes Minnesota: o Demographers' estimates in Minnesota for 1980 to 1985 include a consewative estimate of an over 50 percent increase in the Aian-American population. (Copulation Notes, 1988). o One of the world's largest urban concentrations of Hmong people15,000-resides in Nfinne- apolis/St. Paul (Spring, 1989). Texas is an example of a state undergoing major demographic shifts. The population is growing at twice the national average due to in-migration from other states and foreign" immigration as well. Accord- ing to a report by the Hogg Foundation for Mental Health: o " o o . Between 1980 and 1986, two-thirds of these im- migrants were from htin America and 22 percent from Aia. Children comprise almost 30 percent of the sta te's population, and 24 percent of these children live in poverty. Children of mior are overrepresented: almost half of the" poor children in Texas are Hispanic and 42 percent are black Over three-fourths of these children live in female-headed families where the mother is under age twenty-five (Harris, 1988). Children of color are the most rapidly increasing group in the U.S. pc)puIation and the largest at-risk group for disabilities. By2010, nearly one quafierof all children in theU.S. States-in spite of strides in the past twenty years- will be children of color (U.S. Congres, 1$E19). Nation people of color are affected disproportionately by w-de, significant enrollment changes had already oc poverty. Ccmnections behveen poverty and risk for curred between 1970 and 1980: in 1970 schcmls were21 disability are linked to people of color in the United percent nonwhite; by 1980 th~~jr were 27 percent non State-s. wlite. Students of coIgr are HOW the major~~y in the .Contributing factors are, the: twenty-five largest school sys:a-M in !he `=::nt~' ~~ -- (Mmor@Isslus, 1%?. `" ,,-l{; I< ~c ~uess to "heal [ii care for people of color in AJthough nation~"de the cverali population of ~~ : "~-~$'" children has declined, the preschool ~pulation of the : ,0. :~arge POrPor\i.ori Ofc~i*.dTe~.9[co1?r who are Poor; United StatM incremed by 11 @rtint between 19841 and Q Significa'nt' "p'ercentag'e "of at-risk, " high-school 1986 and cantinua to grow. In 2 fewstates the preschool ,, "dropout'woman of color under age thirty who are population ha-s decre+ whale other states, such as ~ mothers of preschool children: AJaskal Florid% "Arizon% @} fomi% and T-, have o ". dir~ct .'correlation berween a mothe'r's"~high~r ~e~epced dramatic~m~~,~:S.,tin~~ 1%9). . . . education leve~ and early ideritificatiori'bf a child's Poverty, inm~ofj~e~,~ @.a"C~lWd attribute. Yet .disabilityorpossible disabili~'(tfi~ ~e-tteteducated due ~~ thefito~~f~atial dic~-~!-:,~~-t. `>.~~.,;,ed Q-. l.i.....-. .'ti. . . . . ---J .-. the:rn"other'. the"earli;{-~h%-.identific~titi~). . ,. . -. . . . . . . . ., . . . . . -. . . . . . . . . Demogaph~s ~ *I+E j<~~~,~ .VEC"TAS _-l --- 2 ~'at:is;(th~'jirnpac. tofPover~Y:on :Children :ofcolor-f . . . . ". . ....-,-.4 . . . ch~~ren;:of.